Family makes every day Christmas as they pray daughter with rare condition will survive until December 25th
For Rachael and Leigh Badman, there is only one wish on their Christmas list this year – that their terminally ill daughter survives until December 25.
Fifteen-year-old Paige suffers from a rare brain condition which affects as few as 12 people in the world, and could kill her any day without warning.
And her condition has deteriorated so much in recent months that her parents filled the family home with Christmas decorations on November 1 so she can enjoy the run up to her favourite day of
the year.
Paige suffers from Pitt Hopkins syndrome, a genetic condition which causes the brain to shrink and leads to severe breathing difficulties.
It is thought there have only been 12 confirmed cases worldwide, although there may be more who suffer but have not been diagnosed.
The disorder is so rare that research into treatment is limited, and Paige was only officially diagnosed with the condition four years ago.